Being a caregiver in the management of chronic mental illness: A phenomenological qualitative research
DOI:
https://doi.org/10.14687/jhs.v20i1.6317Keywords:
mental illness, caregiver, caregiving experience, families, qualitativeAbstract
Research aim/problem: This research was performed to evaluate the caring experiences of caregivers’ of individuals diagnosed mental illness.
Method: This qualitative study was performed with 13 caregivers who care for individuals who had chronic mental illness at inpatient units and community mental health center of a hospital serving in the Aegean Region of Turkey. The data collection process was performed by introductory form, semi-structured interview forms were used during interviews as face-to-face in-depth interviews.
Results: The sample population was comprised of 13 caregivers. The participants’ average age was 45.6 (min: 29–max: 62), of which 5 were single, 8 were women, 2 had a graduate degree, 8 had children. Participants had an average of 10 years of caring period (min: 3- max:22) and %61.5 had a support during a patient care. According to the results, five themes were determined related to experiences of caregivers. Themes were “difficulties related to caring, experiences related to social life, experiences related to emotional issues, positive aspects and experiences related to family matters”. Subthemes of this study were controlling behaviors, treatment follow up, controlling disease symptoms, planning future, stigmatization, restrictions on social life, emotional expression, ambivalant emotion, crisis management, sharing similar experiences, effectiveness of education, family support, daily routines, family roles.
Conclusion: In this research, difficulties of the caregiving process are management of emotional and behavioral problems, maintaining treatment, stigma, social limitations, changes in family dynamics ve concerns about the future. Educational activities and sharing similar experiences with other caregivers were determined as positive experiences. Supporting caregivers in chronic mental illnesses can improve care quality by reducing the burden of care. It is important to plan effective interventions for caregivers, to implement psychoeducational programs and to provide home psychiatric care services.
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